We are involved in health research. We will not use of disclose your personal health information for these purposes unless you have been informed beforehand and given your consent for us to do so.
We are currently involved in research studies for which we provide anonymised information from patients’ notes. The risk of you being identified from this information is extremely low as all directly identifiable details ( name, address, postcode, NHS number, full date of birth) are removed from your notes before they are collected for research, and automatic programs to de-personalise and free text (non structured or coded data) are run after information is collected. Individual patients records are added into a much larger anonymous database, containing records from millions of patients across the UK. This information is used by researchers outside the practice.
The database to which we contribute anonymised records is known as The Health Improvement Network (THIN) and Clinical Practice Research Datalink(CPRD). This data may be anonymously linked to other data, such as hospital data. This database is managed by companies outside the NHS which does not have access to your personal details, only to anonymous medical records. The data is used for research into such topics as drug safety, disease patterns, prescribing patterns, health economics and public health. Many of these studies provide useful information to medical staff on diseases, the use of drugs or outcomes of disease or treatment.
These studies may be performed by academic researchers or commercial companies amongst others. However, no researcher has access to your full details such as your name and address, initials or your full date of birth. The researchers are not given information on the GP nor the practice name, address or post code.
If you would like to opt out of this data collection scheme, please let your doctor know and no data from your records will be collected or used in research. This will not affect your care in any way.
If anything to do with the research would require that you provide additional information about yourself, you will be contacted to see if you are willing to take part; you will not be identified in any published results.